UpLift
UpLift features a programme of training and personal development for young people with muscle weakening conditions. Through regional and online events vital information is shared and connections made with older adults with in the neuromuscular community. All of our events are free and UpLift is aimed at people aged 18-30.
The project has a wide range of activities ensuring that you know your rights, how to protect them, and learn the skills you need to live your life, your way. It features 4 streams:
INFORM Assistive Tech
Suzanne is currently the research officer at Pathfinders Neuromuscular Alliance leading a project on transition to adulthood for those with DMD. She has SMA type II. Suzanne lives in an apartment with her husband and has a care package to support her needs. She also enjoys going out for walks and loves dogs almost as much she loves a good cup of tea!
Suzanne's home is equipped with environmental controls using Amazon's Alexa. She also uses eye gaze technology to help her access the computer. During the session she will share her experience of accessing funding for this tech and her tips on making it as useful as possible.
Suzanne will discuss her experiences and then there will be time for a Q&A.
Online
June 5, 2023, noon - June 5, 2023, 1 p.m.
$0
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